{"id":7324,"date":"2022-01-10T20:39:44","date_gmt":"2022-01-11T01:39:44","guid":{"rendered":"https:\/\/backup.rqmo.org\/team\/"},"modified":"2024-06-25T13:11:08","modified_gmt":"2024-06-25T17:11:08","slug":"team","status":"publish","type":"page","link":"https:\/\/backup.rqmo.org\/en\/team\/","title":{"rendered":"Team"},"content":{"rendered":"\t\t
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Team<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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BOARD OF DIRECTORS<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t
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K\u00e9vin Bouchard<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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President<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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K\u00e9vin completed his doctorate in computer science in 2014 on qualitative spatial reasoning for machine learning in the context of ambient intelligence. He worked as a postdoctoral fellow at the University of Sherbrooke, then as a researcher at the University of California Los Angeles (UCLA) following his studies. Since August 2016, he has been a professor at the Universit\u00e9 du Qu\u00e9bec \u00e0 Chicoutimi (UQAC). There he conducts research on the application of artificial intelligence to create technological tools for various semi-autonomous populations or those experiencing loss of autonomy (chronic illness, cognitive impairment, etc.). More specifically, several of its projects involve the use of sensors (RFID, UWB, etc.) in order to create intelligent habitats to recognize daily life activities and assist people in carrying them out. He is closely affected by orphan diseases since his partner suffers from Elhers-Danlos syndrome and other rare conditions.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Nadie Rioux<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Secretary<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Trained as a nurse since 1997, Nadie initially worked in a hospital critical care unit. Since 2009, she has worked as a research coordinator in different areas of expertise. Son int\u00e9r\u00eat pour les maladies rares et la g\u00e9n\u00e9tique s\u2019est manifest\u00e9 en 2018 en devenant une r\u00e9f\u00e9rence pour les maladies rares au Centre de recherche CHU de Qu\u00e9bec-Universit\u00e9 Laval-Axe Neurosciences au sein du projet de recherche PRISMES (P<\/b>rogramme de R<\/b>echerche et I<\/b>nnovation S<\/b>ur les maladies rarES). <\/b>Ses responsabilit\u00e9s consistent \u00e0 l\u2019accompagnement des familles dans le processus exomique, la recherche de nouveaux g\u00e8nes et d\u2019effectuer des analyses g\u00e9n\u00e9tiques.<\/span><\/p>\n

Nadie is also recognized for her ability to collaborate with international researchers, thereby strengthening the global dimension of rare disease research. Her dedication to this noble cause and her commitment to improving the quality of life of people affected by rare diseases make her an inspiring and indispensable figure in the field of health and medical research.<\/span><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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James Doyle<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Treasurer<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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James is a science entrepreneur passionate about transforming health through innovation and technological advancement. He has held various leadership positions within BioTech and MedTech start-ups, helping to commercialize transformative technologies for patients. A trained scientist with 11 years of research experience, primarily in the field of rare genetic diseases, he has a deep understanding of the challenges faced by the \u201cRare community\u201d. So, he has made it his mission to support patients by advancing therapeutic development and to improve their access to resources. His entrepreneurial experience in the areas of strategy, operations and business development allows him to bring a unique perspective to support the mandates and growth of the RQMO.
James holds a Bachelor’s degree in Biochemistry from Concordia University and a Doctorate in Experimental Medicine from McGill University. He also served for 5 years in the Canadian Armed Forces.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Genevi\u00e8ve Lajeunesse<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Administrator<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Genevi\u00e8ve Lajeunesse has been involved for nearly 20 years with various community groups, marginalized people and civil society organizations. Her areas of focus are information security, digital literacy, research support and amateur sport. Suffering from a rare disease herself and having been on a long journey before obtaining a diagnosis, she hopes to be able to contribute to the mission of the RQMO by smoothing the road to diagnosis and treatment for as many people as possible.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Annie Perreault<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t
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Administrator<\/strong><\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

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Annie Perreault has been a clinical psychologist for more than 20 years, having also held the position of psychologist in GMF-U (a family medicine group) and Clinical Professor affiliated with the Faculty of Family Medicine and Emergency Medicine at Universit\u00e9 Laval. She now divides her time between teaching, clinical supervision, training development and psychotherapy offered to clients affected by depression, anxiety, post-traumatic stress and rare or chronic illnesses. She is also a speaker, trainer and founder of Formations Syllabus, a company which aims to develop knowledge and skills in the field of psychology. In the past, she was involved as a volunteer within the RQMO but also with the Canadian Mastocytosis Society for several years.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t

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Other board members:<\/p>\n