{"id":7494,"date":"2022-01-13T15:55:55","date_gmt":"2022-01-13T20:55:55","guid":{"rendered":"https:\/\/backup.rqmo.org\/no-diagnosis\/"},"modified":"2024-07-30T13:23:17","modified_gmt":"2024-07-30T17:23:17","slug":"no-diagnosis","status":"publish","type":"page","link":"https:\/\/backup.rqmo.org\/en\/no-diagnosis\/","title":{"rendered":"No diagnosis?"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"7494\" class=\"elementor elementor-7494 elementor-2089\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-1ef8e90 elementor-section-content-middle elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"1ef8e90\" data-element_type=\"section\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-5fff9e7\" data-id=\"5fff9e7\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5c9d7c3 elementor-widget elementor-widget-heading\" data-id=\"5c9d7c3\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">NO DIAGNOSIS?<\/h1>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-fdb8fe7 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"fdb8fe7\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-no\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fb3258f\" data-id=\"fb3258f\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b8d5ab0 elementor-widget elementor-widget-heading\" data-id=\"b8d5ab0\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">YOU DON\u2019T HAVE A DIAGNOSIS?<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-eca0208 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"eca0208\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-78d7986\" data-id=\"78d7986\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ab79388 elementor-widget elementor-widget-text-editor\" data-id=\"ab79388\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Even if your illness (or your child&#8217;s) does not have a name or the diagnosis is not yet certain, you can contact our <a href=\"https:\/\/backup.rqmo.org\/en\/irare-centre-rqmo\/\" target=\"_blank\" rel=\"noopener\">iRARE Centre<\/a>.<\/p><p>We can explore with you if there are some possible avenues that can be taken to obtain a diagnosis in the health system or through research. It is also possible to register in some international registries where people share their information in the hope of finding someone with a similar disease or a researcher who might be interested in it.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-1632d27\" data-id=\"1632d27\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ddaf397 elementor-widget elementor-widget-image\" data-id=\"ddaf397\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"873\" height=\"687\" src=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2022\/03\/sans-diagnostic.jpg\" class=\"attachment-large size-large wp-image-6459\" alt=\"\" srcset=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2022\/03\/sans-diagnostic.jpg 873w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2022\/03\/sans-diagnostic-300x236.jpg 300w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2022\/03\/sans-diagnostic-768x604.jpg 768w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2022\/03\/sans-diagnostic-762x600.jpg 762w\" sizes=\"(max-width: 873px) 100vw, 873px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b3bf370 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"b3bf370\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-850bac4\" data-id=\"850bac4\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-e4d5842 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"e4d5842\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-f935c3e\" data-id=\"f935c3e\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-82f3d9b elementor-widget elementor-widget-heading\" data-id=\"82f3d9b\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h4 class=\"elementor-heading-title elementor-size-default\">Here is a guide to help you \u200b<\/h4>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-a57e0f6 elementor-widget elementor-widget-text-editor\" data-id=\"a57e0f6\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>The Rare Disease Foundation&#8217;s guide: <\/p><p><a href=\"https:\/\/rarediseasefoundation.org\/pages\/living-without-a-diagnosis\" target=\"_blank\" rel=\"noopener\"><strong>Living Without a Diagnosis. Road map and Navigation Tools for Families.<\/strong><\/a><\/p><p>Translated in French by the RQMO:<\/p><p><a class=\"ari-fancybox-pdf ari-fancybox\" href=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2023\/07\/Vivre-sans-Diagnosis-Rare-Disease-Foundation_Francais-reduit.pdf\" target=\"_blank\" rel=\"noopener\" data-src=\"https:\/\/backup.rqmo.org\/wp-content\/plugins\/ari-fancy-lightbox\/assets\/pdfjs\/web\/viewer.html?file=https%3A%2F%2Fbackup.rqmo.org%2Fwp-content%2Fuploads%2F2023%2F07%2FVivre-sans-Diagnosis-Rare-Disease-Foundation_Francais-reduit.pdf\"><strong>Vivre sans diagnostic. Feuille de route et outils de navigation pour les familles<\/strong><\/a><\/p><p>\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-888c8d7\" data-id=\"888c8d7\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0c86d9e elementor-widget elementor-widget-text-editor\" data-id=\"0c86d9e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p style=\"text-align: center;\">By the Rare Disease Foundation (Canada)<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f8076e2 elementor-widget elementor-widget-image\" data-id=\"f8076e2\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/rarediseasefoundation.org\/pages\/living-without-a-diagnosis\" target=\"_blank\">\n\t\t\t\t\t\t\t<img decoding=\"async\" width=\"232\" height=\"300\" src=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2024\/06\/Screen_Shot_2021-10-28_at_1.43.32_PM_480x480-232x300.webp\" class=\"attachment-medium size-medium wp-image-7688\" alt=\"\" srcset=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2024\/06\/Screen_Shot_2021-10-28_at_1.43.32_PM_480x480-232x300.webp 232w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2024\/06\/Screen_Shot_2021-10-28_at_1.43.32_PM_480x480.webp 371w\" sizes=\"(max-width: 232px) 100vw, 232px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-f836aff elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"f836aff\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-58123a4\" data-id=\"58123a4\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1e9a4dd elementor-widget elementor-widget-heading\" data-id=\"1e9a4dd\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Resources for the undiagnosed<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-fd97db6 elementor-widget elementor-widget-text-editor\" data-id=\"fd97db6\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<h4>Diagnostic aid tools<\/h4><ul><li>A tool to try to find your diagnosis: <a href=\"https:\/\/raremd.com\/rarelook\/\" target=\"_blank\" rel=\"noopener\">RareLook<\/a><\/li><li>Tools for your doctors: see our page <a href=\"https:\/\/backup.rqmo.org\/pour-les-professionnels\/\" target=\"_blank\" rel=\"noopener\">For professionals<\/a><\/li><\/ul><h4>Associations and support groups<\/h4><ul><li><a href=\"https:\/\/www.undiagnosed.org.uk\/\" target=\"_blank\" rel=\"noopener\">Syndromes Without a Name (SWAN) UK<\/a><\/li><li>Patients and families of the <a href=\"https:\/\/undiagnosed.hms.harvard.edu\/resources\/peer\/\" target=\"_blank\" rel=\"noopener\"><em>Undiagnosed Network <\/em><\/a>(United States)<\/li><li><a href=\"https:\/\/forums.maladiesraresinfo.org\/maladies-sans-diagnostic-f266.html\" target=\"_blank\" rel=\"noopener\">Discussion forum<\/a> for people without a diagnosis by &#8220;Maladies Rares Info Services&#8221; (France)<\/li><li><a href=\"https:\/\/www.rareconnect.org\/fr\/community\/undiagnosed-diseases\" target=\"_blank\" rel=\"noopener\">RareConnect Forum<\/a> on undiagnosed diseases<\/li><\/ul><h4>Publications and media<\/h4><ul><li><a href=\"https:\/\/www.lappui.org\/fr\/je-suis-aidant\/comprendre-la-situation-de-mon-proche\/dossier-maladies-rares\/aider-sans-connaitre-le-diagnostic\/\" target=\"_blank\" rel=\"noopener\">Helping without knowing the diagnosis<\/a> (Support for caregivers)<\/li><li><a href=\"https:\/\/ici.radio-canada.ca\/ohdio\/premiere\/emissions\/les-samedis-du-monde\/segments\/entrevue\/55592\/sante-diagnostique-difficile-maladie-rare-television\" target=\"_blank\" rel=\"noopener\">Maux myst\u00e8res (Mystery Ailments)<\/a> TV series (Canal Vie).<ul><li>Watch the <a href=\"https:\/\/www.imdb.com\/title\/tt6878478\/?ref_=ttep_ep_tt\" target=\"_blank\" rel=\"noopener\">episodes<\/a>.<\/li><\/ul><\/li><li><a href=\"https:\/\/www.imdb.com\/title\/tt0478078\/?ref_=ttep_ep_tt\" target=\"_blank\" rel=\"noopener\">Mystery Diagnosis<\/a> TV series<\/li><li>Book: <a href=\"https:\/\/www.amazon.ca\/Genome-Odyssey-Medical-Mysteries-Incredible\/dp\/1250234999\" target=\"_blank\" rel=\"noopener\">The Genome Odyssey: Medical Mysteries and the Quest to Solve Them<\/a><\/li><\/ul>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-eaf41be elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"eaf41be\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-2b6dbdf\" data-id=\"2b6dbdf\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-dd97266 elementor-widget elementor-widget-text-editor\" data-id=\"dd97266\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<\/p>\n<p>Listen to Caroline&#8217;s story about her son, Tommy, without a diagnosis for 14 years!<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-2a416a3 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"2a416a3\" data-element_type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/fb.watch\/l_R0SapdPJ\/?mibextid=v7YzmG\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t<span class=\"elementor-button-icon\">\n\t\t\t\t<i aria-hidden=\"true\" class=\"fab fa-facebook\"><\/i>\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Facebook Video<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-49d11ce\" data-id=\"49d11ce\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-da2228c elementor-widget elementor-widget-image\" data-id=\"da2228c\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"818\" height=\"522\" src=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2023\/07\/CarolineTommy.png\" class=\"attachment-large size-large wp-image-6470\" alt=\"\" srcset=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2023\/07\/CarolineTommy.png 818w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2023\/07\/CarolineTommy-300x191.png 300w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2023\/07\/CarolineTommy-768x490.png 768w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2023\/07\/CarolineTommy-800x511.png 800w\" sizes=\"(max-width: 818px) 100vw, 818px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-83a43cf elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"83a43cf\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c3db3fe\" data-id=\"c3db3fe\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-e16bfaf elementor-widget elementor-widget-spacer\" data-id=\"e16bfaf\" data-element_type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d50d3a1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d50d3a1\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-184fb21\" data-id=\"184fb21\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-6b203bb elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6b203bb\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-5566646\" data-id=\"5566646\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-098969b elementor-widget elementor-widget-image\" data-id=\"098969b\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"297\" src=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2021\/01\/Pub-Mois-de-Zebrier-2022-1024x297-1.png\" class=\"attachment-large size-large wp-image-6428\" alt=\"\" srcset=\"https:\/\/backup.rqmo.org\/wp-content\/uploads\/2021\/01\/Pub-Mois-de-Zebrier-2022-1024x297-1.png 1024w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2021\/01\/Pub-Mois-de-Zebrier-2022-1024x297-1-300x87.png 300w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2021\/01\/Pub-Mois-de-Zebrier-2022-1024x297-1-768x223.png 768w, https:\/\/backup.rqmo.org\/wp-content\/uploads\/2021\/01\/Pub-Mois-de-Zebrier-2022-1024x297-1-800x232.png 800w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-5e6e63a\" data-id=\"5e6e63a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-6790f40 elementor-widget elementor-widget-text-editor\" data-id=\"6790f40\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>Read the article: <a href=\"https:\/\/backup.rqmo.org\/les-plus-orphelines-des-maladies-rares-les-maladies-sans-nom\/\" target=\"_blank\" rel=\"noopener\"><em>Les plus orphelines des maladies: les maladies sans nom<\/em><\/a><\/p><p>Listen to the conferences on the theme of the &#8220;undiagnosed&#8221; presented during our <a href=\"https:\/\/zebrier.rqmo.org\/\" target=\"_blank\" rel=\"noopener\">Month of Zebruary 2022<\/a>. (Some conferences are in English and others have English translation).<\/p><p>\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-0c099bc elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"0c099bc\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-66 elementor-top-column elementor-element elementor-element-08f7e0d\" data-id=\"08f7e0d\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ac2f19f elementor-widget-divider--view-line elementor-widget elementor-widget-divider\" data-id=\"ac2f19f\" data-element_type=\"widget\" data-widget_type=\"divider.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t<div class=\"elementor-divider\">\n\t\t\t<span class=\"elementor-divider-separator\">\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a9b5a64\" data-id=\"a9b5a64\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>NO DIAGNOSIS? YOU DON\u2019T HAVE A DIAGNOSIS? Even if your illness (or your child&#8217;s) does not have a name or the diagnosis is not yet certain, you can contact our iRARE Centre. We can explore with you if there are some possible avenues that can be taken to obtain a diagnosis in the health system [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"site-sidebar-layout":"no-sidebar","site-content-layout":"page-builder","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"disabled","ast-breadcrumbs-content":"","ast-featured-img":"disabled","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"enabled","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"ast-content-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"tablet":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""},"mobile":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center center","background-size":"auto","background-attachment":"scroll","background-type":"","background-media":"","overlay-type":"","overlay-color":"","overlay-opacity":"","overlay-gradient":""}},"footnotes":""},"class_list":["post-7494","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/pages\/7494","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/comments?post=7494"}],"version-history":[{"count":40,"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/pages\/7494\/revisions"}],"predecessor-version":[{"id":8155,"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/pages\/7494\/revisions\/8155"}],"wp:attachment":[{"href":"https:\/\/backup.rqmo.org\/en\/wp-json\/wp\/v2\/media?parent=7494"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}